Who runs the Montreal Chapter of Dysautonomia?
It is completely volunteer run. The Board is made up of relatives of those that have FD as well as friends of those families.
What are your activities?
Primarily fundraising and raising awareness about FD and the need to have genetic testing done.
Where does the money go?
Primarily to support clinical work and research. Past recipients have been local Montreal hospitals and the Familial Dysautonomia Center based at the New York University Hospital. We work in conjunction with the Dysautonomia Foundation to identify potential recipients. In 2006 the chapter became a founding sponsor of the Montreal Jewish Hereditary Disease Fund. See the News page for some details.
